I am by nature a very private person but I did want to take a moment and talk about something very near to my heart and that is about the disease Multiple Sclerosis!
Those that know me well know that my husband is disabled with this disease and that as of yet there is no cure on the horizon. Multiple Sclerosis is a dreadful disease and will with time rob you of everything that you may have taken for granted up until that point. It is a very difficult disease to diagnose and can take many years before a final diagnosis......
This was the case for my husband and also for many others. When my husband was in his thirties and early forties he experienced odd little episodes that would be perplexing. Things such as deep tiredness, tingling in the fingers and episodes of numbness in the face, neck and legs. Many tests were done and the outcome was that it was probably just stress. He did have a very stressful job and flew all over the world so we were happy to believe that this was in fact the case......
This continued until he was 47 when his legs suddenly stopped working correctly and he had a lot of trouble walking. This was the point that an MRI showed up the first lesion and a spinal tap was performed. We then had the diagnosis that we had known in our hearts for years, he had Multiple Sclerosis!
Many people do not know but more women than men have M.S, but when men do get M.S their progression is usually more rapid and a lot more agressive. This was the case for my dear husband. The disease rapidly striped him of all of the things that he loved to do, walking became a memory and holding hands was now long gone (he cannot feel me holding his hand and it is painful for him to do so). This is one of the things that I miss most is walking alongside of him and simply holding his hand. You do not appreciate the simple things until they are gone. By the time my husband was diagnosed he was by then in the Secondary Progressive Stage......
The only reason that I am taking time now to talk about something so private to both of us is because there is something new on the horizon and it is a small hope and possibility. An Italian doctor called Paulo Zamboni decided to take action when his wife was diagnosed with M.S eight years ago. He did lots of research and decided that M.S was not a neurological disease but a narrowing of important blood vessels to and from the brain. This is now getting a lot of attention around the world and clinics are opening up everywhere and are now offering the treatment procedure that Doctor Paulo Zamboni designed......
I have spent many hours on the computer and I honestly mean many, going from website to website and now the crux of it is that I am taking my dear husband to Europe in September for what is called The Liberation Procedure or CCSVI to give it its medical term. If anyone wants any information about CCSVI they only have to Google it, go onto Facebook and also Youtube. There is more and more information coming out daily......
We are not looking for a miracle at this point but we are hoping to stop the progression of his disease. If you know anyone with M.S. get them to take the time to look up CCSVI and also Doctor Paulo Zamboni. We have the support of our doctor here in the States to go to Europe and he has taken the time to read the information on this procedure......
So come September I will be taking my dear husband on a plane to Europe and he will undergo The Liberation Procedure. We are scared and excited at the same time and our miracle is just to halt the disease. Keep your fingers crossed for him when the time comes, blessings......
Beautiful butterfly......
Is it just me but this sweet image reminds me of Princess Diana......
